Friday, May 21, 2010

I love her

Abbie started LENS treatment a few months ago.

The results were not exactly what we had hoped for.  It was devastating.  During this time she learned all the parts of the brain, all the locations that they used, and understood LENS better than I did.  The doctor in charge didn't know what hit him when he started.  

During one of her treatments, they noticed some characteristics of a seizure.  They called me in immediately (because of course Gunner is gone) and they gave me the news.

We waited months for an appointment with a pediatric neurologist.  We had the appointment yesterday, and since Gunner got pulled for a class, I had to take Junior with me.  Big mistake.  I don't think that doctor knew what hit him.  Abs was full of questions about anything and everything related to his position.  He had the patience of a saint, even when Junior (who was napless) was a handful.

Basically all the neurological tests that they (her amazing pediatrician and the neurologist) have done indicate that she is okay for the most part (meaning they don't think there are any brain tumors or anything).  They will start with an EEG which we will have done in July.  From there, we will decide what needs to be done next.  (They told me that they need her to get no more than 5 hours of sleep before the test--like that's a problem!  Most parents will have to stay awake to keep their child awake, but we can just turn her loose on the wii and provide pizza, since she is up all night anyway).  

There are so many different types of seizures, and so many different treatments.  It could be that we are dealing with nothing, but it is better to be safe than sorry.  I am nervous, but then if this is what is happening, it could be the reason that Abs doesn't sleep, or explain even more of her behavior "episodes".

I've only noticed on "episode" that concerned me, but then I wasn't sure what to look for before.  

If anyone has any experience with this, please let me know, I'd love to hear all outcomes, you can email me.

I love this kid, and I would do anything for her, so until we have answers, I'll be sitting at home, volunteering at her school, and trying to figure out the best way to help her.  There have been so many stories here in Colorado lately of people that have killed children, and I am so thankful that Abs was given to me.  She might give me gray hair, give me a run for my money, keep me trying to stay one step ahead, but she knows she is loved unconditionally.  

13 comments:

d.a.r. said...

Oh geeze, I hope you guys get some answers soon! I can't imagine the not knowing!

Ashley said...

I know waiting on answers is the hardest part! Abs and you and Gunner are in my prayers!

Brandi said...

Many prayers for you and the family. I'm sure this is hard especially with Gunner heading out again soon. Also, for the issue with her not sleeping, have you discussed with her doctors the idea of giving her a dose of melatonin before bed? It works wonders for my cousins son.

Mel said...

It sounds like you have great doctors AND a great kid! It is wonderful that she takes an interest in her health by asking questions. Mostly, it's great that you love her as much as you do. All these factors will make this easier.

Your family is in my prayers.

Just a Girl said...

I hope you guys can get some answers soon, I can't imagine how stressfull it is not knowing.

Uncle Dan said...

Hugs and kisses to all!

Mr. Superman & Mrs. S. said...

I hope you get all the answers you need soon! You're the perfect person to be her mama :)

MACsWIFERia said...

I hope you will get some answers soon. please keep us updated.
http://uktotheusa.blogspot.com/

cj said...

Not much to say that hasn't already been said except to add that you guys will be in my prayers.

Seriously, I think God knew what he was doing when he sent her to you guys.

Keep your chin up, my dear.

cjh

fullfreezer said...

Hang in there. I hope you get your answers soon. I well understand the waiting game.
Hugs to you and yours.
Judy

BJ_Mama said...

First of all, HUGS!
We have gone through lots of testing with our 2yo daughter, so I know what the worry/un-answered questions are like.
I will keep you and your family in my prayers...and GOD BLESS you for loving your children so wholeheartedly! That's why God gave them to us, right? :)

New Girl on Post said...

I can imagine how stressed and worried you are right now. I don't have any advice, even though we dealt with my brother having seizures for a long time.

The Mrs. said...

wait and see wait and see it gets old doesnt it? we have a surgical consult for dash1 tomorrow for his stomach. good times. You guys are in my thoughts, I hope you get all good answers.

and when in doubt, just send her over here and her and dash1 can just go crazy free on the farm. Could you imagine her on a 4wheeler?! the cows wouldnt know what hit them!