Abbie started LENS treatment a few months ago.
The results were not exactly what we had hoped for. It was devastating. During this time she learned all the parts of the brain, all the locations that they used, and understood LENS better than I did. The doctor in charge didn't know what hit him when he started.
During one of her treatments, they noticed some characteristics of a seizure. They called me in immediately (because of course Gunner is gone) and they gave me the news.
We waited months for an appointment with a pediatric neurologist. We had the appointment yesterday, and since Gunner got pulled for a class, I had to take Junior with me. Big mistake. I don't think that doctor knew what hit him. Abs was full of questions about anything and everything related to his position. He had the patience of a saint, even when Junior (who was napless) was a handful.
Basically all the neurological tests that they (her amazing pediatrician and the neurologist) have done indicate that she is okay for the most part (meaning they don't think there are any brain tumors or anything). They will start with an EEG which we will have done in July. From there, we will decide what needs to be done next. (They told me that they need her to get no more than 5 hours of sleep before the test--like that's a problem! Most parents will have to stay awake to keep their child awake, but we can just turn her loose on the wii and provide pizza, since she is up all night anyway).
There are so many different types of seizures, and so many different treatments. It could be that we are dealing with nothing, but it is better to be safe than sorry. I am nervous, but then if this is what is happening, it could be the reason that Abs doesn't sleep, or explain even more of her behavior "episodes".
I've only noticed on "episode" that concerned me, but then I wasn't sure what to look for before.
If anyone has any experience with this, please let me know, I'd love to hear all outcomes, you can email me.
I love this kid, and I would do anything for her, so until we have answers, I'll be sitting at home, volunteering at her school, and trying to figure out the best way to help her. There have been so many stories here in Colorado lately of people that have killed children, and I am so thankful that Abs was given to me. She might give me gray hair, give me a run for my money, keep me trying to stay one step ahead, but she knows she is loved unconditionally.